MJFF Project

Measuring what matters – in whom it matters – ensuring diversity and equity in Parkinson’s disease research and care

Principal Investigator: Prof. Katie Brittain

Funder: MJFF

BAM Project members: Prof. Lynn Rochester, Dr Ríona McArdle, Megan Hanrahan, Jack Lumsdon

Contact: Prof. Katie Brittain

Background

A black background with a white outline of a pedestrian walking, including a dotted line showing the crosswalk.
A stopwatch showing elapsed time, a ruler, and scattered pills against a black background. 
Parkinson’s disease is a common neurodegenerative disease that impacts a person’s mobility, including their walking ability
Walking is an important outcome in Parkinson's; however, we lack a reliable measure used to assess walking ability in research and healthcare

Aims & Objectives:

Shield icon with a clock and check mark, symbolizing security and monitoring.
Three faceless figures with speech bubbles above them, representing communication or conversation. 
We will then assess which digital mobility outcomes measures provide a reliable method for monitoring walking in Parkinson's
Inclusive of under-served groups, this study aims to explore people’s experience with Parkinson's symptoms and the impact they have on mobility

Outcomes:

White hands holding a medical cross symbol inside a circle on a black background. 
Findings will inform the development of meaningful digital mobility outcomes for Parkinson's and contribute to the improvement of future treatment outcomes
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